Ehlers-Danlos Syndromes

Ehlers-Danlos syndromes medical cannabis treatment

The term Ehlers-Danlos syndrome encompasses 13 serious and rare connective tissue conditions, with the most common being hypermobile EDS (hEDS), classical EDS, vascular EDS and kyphoscoliotic EDS. Because these conditions are so rare, in the UK there is no specific treatment used to manage symptoms. However, recently, medical cannabis has emerged as an alternative option for managing EDS related pain and insomnia, when other traditional approaches have proven unsuccessful.

Contact us

Disclaimer: The availability of consultations for Ehlers-Danlos syndromes depends on the availability of our specialist doctors. We encourage you to consult with our patient support team to determine if this treatment option is currently available.

Number 1

Condition treated with medical cannabis in the UK is chronic pain.

90%

Of patients with Ehlers-Danlos syndrome experience chronic pain.

68%

Of UK adults would consider medical cannabis treatments

1 in 2500

Around 1 in 2500, to 1 to 5000, are affected by EDS around the world

Symptoms

Clicky joints

Digestive problems/concerns

Dizziness

Fatigue

Fragile or stretchy skin

Increased range of joint movement

Joint or muscle pain

If you are suffering from any of these symptoms. Please speak with your GP to find out more.

Treatment options:

It's very hard to diagnose Ehlers-Danlos syndrome, and there are no tests to confirm whether a person has EDS or not. Unfortunately, there are also no specific treatments to cure EDS, but its symptoms can be treated with a number of different medications, or approaches involving strengthening exercises such as occupational therapy and physiotherapy.

Anti-depressants

Anti-emetics

Benzodiazepine

Long acting muscle relaxants

Opioids

SSRIs

Tryptans

Find out if you may be eligible for EDS medical cannabis treatments here
Am I eligible?

Join our growing community of over 40,000 people

Whether you’re new to cannabis-based medicines, switching from another medical cannabis clinic, or self-medicating, we’ll put you back in control of your health.

Verified
Maxim’s Journey

Condition Chronic Pain

Subscriber 8 months

Verified
Jess' Journey

Condition Fibromyalgia

Subscriber 8 months

Verified
Chloe's Journey

Condition Endometriosis

Subscriber 8 months

Verified
Daisy's Journey

Condition PTSD

Subscriber 8 months

Verified
Daryl's Journey

Condition Anxiety & Depression

Subscriber 8 months

Verified
Carla's Journey

Condition Endometriosis

Subscriber 9 months

Verified
Wojciech's Journey

Condition Insomnia

Subscriber 8 months

Verified
Brandon's Journey

Condition Anxiety & Depression

Subscriber 6 months

Verified
Hollie's Journey

Condition Chronic Pain & Anxiety

Subscriber 8 months

A word from our specialist

"Ehlers Danlos Syndrome (EDS) is a group of inherited disorders affecting connective tissues, characterised by joint hypermobility, skin hyperextensibility and tissue fragility. Managing EDS can be challenging due to chronic pain, joint instability and other symptoms including those related to changes in blood pressure and increased heart rate, fatigue, cognitive disturbance and bladder/bowel disturbances. Medical cannabis holds potential as a complementary treatment for pain management, muscle relaxation, improved sleep and reducing anxiety. EDS patients using medical cannabis often report improvements in these symptoms, in addition to improvement in overall quality of life."

Dr Hanna Gul

Rheumatology

Find out if you may be eligible for EDS medical cannabis treatments here
Am I eligible?

Articles on Ehlers-danlos syndromes

31. 05. 2024

Can medical cannabis help people with Ehlers-Danlos syndrome?

Yes, cannabis-based therapy options are showing huge promise in helping reduce chronic pain, sleep disturbances, gastrointestinal upset, muscle spasms and stiffness, anxiety, and also the reliance on heavy (and sometimes totally ineffective) pharmaceutical options that come along with the diagnosis of Ehlers-Danlos syndrome (EDS).

06. 09. 2023

Is medical cannabis effective in managing pain?

If you are looking for a complementary pain management solution to add to your existing treatment plan, you are anything but alone. Right here in the UK, around 34% of the population (that's close to 15.5 million people) are affected by chronic pain. Chronic pain is an unwelcome passenger on the journey for many patients living with long-term medical conditions, and is a common symptom of countless diseases and illnesses.

22. 09. 2023

Can you get a medical cannabis card for chronic back pain in the UK? 

Medical cannabis is an increasingly popular treatment option for people suffering from chronic back pain. But to legally access it in the United Kingdom (UK), you need a physician registered to the General Medical Council Specialist Register to prescribe you cannabis. That means that, more than likely, your current GP won’t be able to help you get a medical cannabis prescription. NHS medical cannabis patients are not provided with a medical cannabis card, as unlike some other countries, it is not a legal requirement to carry a card. Again, if you are looking for the added protection that holding a medical cannabis card offers, then a private clinic is the best way to go.

Can cannabis-based treatments help Ehlers-Danlos syndrome symptom management?

Unfortunately, for patients with Ehlers-Danlos syndrome, there are very few clinical trials that investigate how patients with the condition respond to specific treatments, and medical cannabis is no different. 

Although there is currently no evidence available from clinical trials investigating EDS patients and their response to medical cannabis, there are a number of studies that investigate the effects of cannabis-based treatments on some of the common symptoms of EDS, like insomnia, pain, and bowel or gut-related concerns which have shown promising results. 

It’s believed that medical cannabis can work in a multifaceted nature, and target a number of ‘concerns’ or ‘issues’ at the same time. When cannabis compounds, called cannabinoids, enter the body, they enter a system called the endocannabinoid system. This system is responsible for regulating a number of biological responses, including some of the common Ehlers-Danlos syndrome symptoms previously mentioned. 

Our specialist doctors can legally prescribe cannabis-based treatments to UK-based patients who have been struggling to manage their EDS symptoms with conventional medicines, and are here to support patients through their journey with medical cannabis. To find out if this course of treatment could be suitable for you, fill out our free online eligibility checker today.

Learn how Releaf works